He worked the pile after 9/11, got sick and now can’t get help amid turmoil at RFK Jr.’s CDC

A nypd cop who said he had health problems of the toxins languid by zero soil more than two decades has still received no aid from the federal government – because his illness has not been certified by the World Trade Center health program in the midst of continuous CDC disorders.

“They did not even look at him,” said the retired detective Richard Volpe about the rare kidney disease he has been fighting for 22 years. “He was not even before the federal victim compensation Fund. It’s even crazy to think about it. “

Volpe, who spent six months at the same time in Ground Zero and the Dencharge of Staten Island where he sift through the mutilated remains of the twin towers for human remains, suffers from an Igan nephropathy, an extremely rare disease that destroys the kidneys.

The condition, also known as shepherd’s disease, is so rare that only 1.4 out of 100,000 people diagnosed it.

But the troubles and lack of communication with the Centers for Disease Control and Prevention, led by the Secretary of Health and Social Services of President Trump, Robert Kennedy, left the defenders of September 11 in the dark. Since Kennedy resumed HHS, the defenders of September 11 have not been able to officially speak of anyone to find out if the WTC health program has verified one of the new medical conditions or if studies are carried out on new diseases of September 11.

This silence left Volpe and others in the limbo.

Volpe knew that something was just after the terrorist attack. After working the battery for two days in a row, hoping to find survivors, he finally received the order to go home and rest.

“After taking a shower, I had to take a dust mold to remove all the soot that came out of my body, it was in my ears and my eyes,” he recalls. “It would not go down in the sewers.”

Volp, now 58, received a diagnosis of Igan in 2003, less than two years after being removed from the battery.

“It was not only a surprise for me, but also for my doctor, because I was a mainly healthy eater and a passionate gym lover,” recalls Volpe. “The other surprise was the loss of 60% renal function in less than a year.”

Given that it was extremely rare for the condition of hitting a healthy man in their thirties and being so aggressive in such a short time, his doctors could not find any other cause than the breathable volpe toxins while working in Ground Zero and the Dencharge of Staten Island.

“I have a letter in 2004 from my doctor who thought that kidney disease has passed in my lungs,” said Volpe. “And everything that is ingested in your body goes through your kidneys.”

But, at the time, the doctors who took care of the survivors of September 11 were more focused on the respiratory conditions arising from zero soil. Volpe and his detective colleague from NYPD John Walcott, whose time on the battery left him in terminal phase in 2004, continued the city, saying that the town hall had failed to protect them from toxic smoke. The case is still pending.

Volpe and Walcott also helped defend the death of Zadroga Act, which created the World Trade Center health program, which now provides medical assistance to the first survivors diagnosed with one of the certified medical conditions of the program.

Walcott cancer has become a certified condition and is now in remission.

But Volpe’s disease has not yet become a certified condition, even if 24 additional survivors have dropped the same diagnosis – an amazing number given the scarcity of the disease.

A study had been carried out to determine the link between shepherd’s disease and the toxins of September 11, but the results have not yet been published, a first pivot step to obtain the certified condition as a disease of September 11.

“I do not know how many people have broken down to Ground Zero, perhaps 100 to 125,000, so the chances of this disease that arrived at 25 of us alone should be sufficient to put it in front of the line,” said Volpe, whose health problems forced her to retire in 2004 after 13 years at work. He is currently living in Florida with his wife and two daughters.

The disease ravaged the kidney kidneys. About 12 years ago, he received a new kidney from an anonymous donor, but these replacements only last 15 years, he said.

“I just wonder if it’s the year I am looking for a new kidney,” he said. “I have the impression that I and the others who shared my diagnosis were lost in the shuffle. We are not a large group of first stakeholders with this diagnosis, but we all suffered otherwise than the others that were covered. ”

“Twenty-two years old is a long time to be ignored,” he said.