Living with polycystic ovary syndrome can be difficult and lonely | Polycystic ovary syndrome

Thank you for publishing the article on polycystic ovary syndrome (SOPK) by Charlie Brinkhurst -Cuff (I was diagnosed with the SOPK – and I quickly drowned in disinformation, June 22). He resonated with my experience of diagnosis and frustration in the face of the total absence of support. I was tested for the first time in my adolescence and I said that my blood test was normal. I was reteteted at 34 when I went to my general practitioner on weight gain and struggles with exhaustion. When I was confirmed that he had sopk, I was warned of health problems, and I said that the best thing I could do was lose weight, even if it would be very difficult, and come back when I was fighting to design.

Charlie is right: the time and the energy I had to devote to try to understand how to be healthy was a huge drain. Especially through the masses of disinformation. It took me two years and a lot of work to understand a diet and an exercise plan that worked for me. It was difficult and lonely to try to navigate by myself.

Despite the warnings, I was lucky and I got pregnant easily. Unfortunately, my maternity treatments are colored by a lack of understanding of the SOPK. I know that I am more at risk of miscarriage, gestational diabetes and pre-eclampsia, but my midwife rejected my concerns concerning all except diabetes. I had an additional test for diabetes at the start of my pregnancy, fortunately negative and another reserved for 28 weeks. But I had trouble anxiety, because I am more at risk without support or advice. Being rejected as worrying about anything has not helped.

The NHS must provide a better understanding and better support for people with SOPK. I hope it improves quickly. I would hate, if I had a girl, for her to have the same experience as me.
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